Showing posts with label ACC Agenesis of the Corpus Callosum. Show all posts
Showing posts with label ACC Agenesis of the Corpus Callosum. Show all posts
Wednesday, August 19, 2009
New ACCAA Video for ACC Kids
Heres the new ACC Kids video with music by Mariah Carey and KSM hope you all enjoy!
Wednesday, July 23, 2008
ACC and Me part 2
Hey everyone-
Sorry it's taken so long to get back to this! Soon there should be more blogs. But hopefully they will be from other people so that you dont have to put up with much more of me. Until then I'm going to share the 2nd and final blog of the "ACC and Me" series by...ME!
Basically all I really wanted to share this time was the difficulty of living day by day with ACC of my level. I get lost easily. I cant ride a bike. to tie my shoe is a pain because it just comes untied quickly again. Learning is like this: In one ear and out the other. Though I wish it wasnt...I like to learn...I wish I were better at it (haha)
I get easily frustrated with myself and the fact that I cant focus on certain things. Theres not one thing that I'm just great at. I tried piano...it doesnt stick well, tried other instruments and sometimes Its like I have relearn every time I pick the instrument up. I get so tired so easily and Migraines are my best friends. By this I'm saying I hate them but they are always there for me...
Dont get me wrong I'm not complaining. Life isnt bad it's just hard, but isnt it hard for everyone in different ways? Living life to the fullest is my way of overcoming my ACC. I am a Christian. I believe that Christ watches over me and helps me through each day, and I've felt His presence. when I've gotten lost theres always someone with me that will help me... people make fun of me because I cant ride a bike but its okay. I know what I can and cant do and I work with what I can work with.
ACC is very frustrating, its one of those things I wish I could beat...and I can just learning to cope with it, but not hide that I have it (like I wanted to do for so long...) is a form of me beating this. Making sure that people are aware of the ACC is a form of beating this! And I just feel so blessed to be given this opertunity.
Sorry that this isnt much. Join in next time for another blog with someone else about ACC! :) God Bless
-Lynnea
Sorry it's taken so long to get back to this! Soon there should be more blogs. But hopefully they will be from other people so that you dont have to put up with much more of me. Until then I'm going to share the 2nd and final blog of the "ACC and Me" series by...ME!
Basically all I really wanted to share this time was the difficulty of living day by day with ACC of my level. I get lost easily. I cant ride a bike. to tie my shoe is a pain because it just comes untied quickly again. Learning is like this: In one ear and out the other. Though I wish it wasnt...I like to learn...I wish I were better at it (haha)
I get easily frustrated with myself and the fact that I cant focus on certain things. Theres not one thing that I'm just great at. I tried piano...it doesnt stick well, tried other instruments and sometimes Its like I have relearn every time I pick the instrument up. I get so tired so easily and Migraines are my best friends. By this I'm saying I hate them but they are always there for me...
Dont get me wrong I'm not complaining. Life isnt bad it's just hard, but isnt it hard for everyone in different ways? Living life to the fullest is my way of overcoming my ACC. I am a Christian. I believe that Christ watches over me and helps me through each day, and I've felt His presence. when I've gotten lost theres always someone with me that will help me... people make fun of me because I cant ride a bike but its okay. I know what I can and cant do and I work with what I can work with.
ACC is very frustrating, its one of those things I wish I could beat...and I can just learning to cope with it, but not hide that I have it (like I wanted to do for so long...) is a form of me beating this. Making sure that people are aware of the ACC is a form of beating this! And I just feel so blessed to be given this opertunity.
Sorry that this isnt much. Join in next time for another blog with someone else about ACC! :) God Bless
-Lynnea
Friday, July 11, 2008
ACC and Me
Hey again-
Well today I just wanted to touch on ACC on a personal level. I've been thinking a lot about how my ACC has been a battle and struggle for me personally, and for those that I know love and care for me.
I'm a very straight forward person. I like to plan, and It doesnt make me very happy when I've been planning something for a while and it just falls apart. I get moody and withdraw from people.
My ACC isnt as bad as some. I have difficulty walking well, I'm clumsy and I get lost so easy. Its a scary thing. A lot of the time I feel I am a burden on those that I care for. And then theres other people who always think I'm lying about my ACC because I'm "normal" and that in itself really hurts me because seriously why on earth would I make up a brain problem? Anyone thats known me since I was a kid that besides my heart, my brain is something I never wanted to doctors to have to look at and deal with when it came to me.
Then two years ago I felt like my world came crashing down, sure ACC isnt terminal...but its still there...well actually the point is that the CC is NOT there. Anyway my point is it's been tough. I practically live with migraines and I have to be careful not to hit my head. However I hit it, almost every day because I'm so clumsy.
Well this is the end of the first installment of ACC and Me. I'll talk about it more later!
-Lynnea
Well today I just wanted to touch on ACC on a personal level. I've been thinking a lot about how my ACC has been a battle and struggle for me personally, and for those that I know love and care for me.
I'm a very straight forward person. I like to plan, and It doesnt make me very happy when I've been planning something for a while and it just falls apart. I get moody and withdraw from people.
My ACC isnt as bad as some. I have difficulty walking well, I'm clumsy and I get lost so easy. Its a scary thing. A lot of the time I feel I am a burden on those that I care for. And then theres other people who always think I'm lying about my ACC because I'm "normal" and that in itself really hurts me because seriously why on earth would I make up a brain problem? Anyone thats known me since I was a kid that besides my heart, my brain is something I never wanted to doctors to have to look at and deal with when it came to me.
Then two years ago I felt like my world came crashing down, sure ACC isnt terminal...but its still there...well actually the point is that the CC is NOT there. Anyway my point is it's been tough. I practically live with migraines and I have to be careful not to hit my head. However I hit it, almost every day because I'm so clumsy.
Well this is the end of the first installment of ACC and Me. I'll talk about it more later!
-Lynnea
Thursday, July 10, 2008
ACC and Us
Hey everyone. I'm Lynnea. and I have ACC *hears a chorus of "Hi Lynnea's"*
ACC is a brain disorder called Agenesis of the Corpus Callosum. Many are born with it though it is coinsidered rare. Everyone with ACC is different. Some are of normal intellegence while others have more difficulty. There are some that cant walk, or talk, or that struggle with seizures. And there are types called partial or complete ACC.
I have complete ACC. It means that the middle part of the brain...the Corpus Callosum, that connects the two sides and sends messages is actually missing or partially missing. Some people with ACC find out young, while others find out when they are much older. I personally found out at age 20 and am now 22. ACC is a struggle for those with it as well as the families and friends of those people.
More people should know about this disorder because there are so many that dont understand it or accept it. And that's what I'm here for. So if there are any questions or any of you out there have it or know someone with it let me know! Let the ACC awareness begin.
-Lynnea
ACC is a brain disorder called Agenesis of the Corpus Callosum. Many are born with it though it is coinsidered rare. Everyone with ACC is different. Some are of normal intellegence while others have more difficulty. There are some that cant walk, or talk, or that struggle with seizures. And there are types called partial or complete ACC.
I have complete ACC. It means that the middle part of the brain...the Corpus Callosum, that connects the two sides and sends messages is actually missing or partially missing. Some people with ACC find out young, while others find out when they are much older. I personally found out at age 20 and am now 22. ACC is a struggle for those with it as well as the families and friends of those people.
More people should know about this disorder because there are so many that dont understand it or accept it. And that's what I'm here for. So if there are any questions or any of you out there have it or know someone with it let me know! Let the ACC awareness begin.
-Lynnea
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