Thursday, August 21, 2008

Website for ACC Awareness

Hey all ACC Awareness has also started calling ourselves ACCA or Acca. Also in other news My mom is trying to get word out about the website that I made. She keeps sending people the blog that as of now doesnt link to the site, but the site links to it. From now on at the end of each post I'm going to do a shameless plug for the site by making it my signature. Once I get back to school be expecting more blogs from our supporters as well as blogs from me about School and ACC. (I will try to minimize the venting) Also I've been gaining many more friends with ACC and will hopefully be asking them to write something for this blog!!!!

Thanks so much for your patience and willingness to read! God Bless
-Lynnea

http://sites.google.com/site/accawareness/

1 comment:

Jean said...

My son, who is now 19 years old, has ACC. We feel like we have been pioneers in the wilderness of diagnosis, treatment and education. We have used many kinds of conventional and unconventional therapeutic and educational methods through the years. Do you know that about the National Organization for Disorders of the Corpus Callosum (NODCC)? They started out as a simple directory of the few families the founders knew about who had a child with ACC. Now they're an official nonprofit research and fundraising org. who sponsors an annual national convention. Check out their website - they may have info you'd be interested in.