Hey there my blog readers,
Hopefully in the coming months I get some more entries from other ACCers or parents or friends of ACCers to post. Until then heres the update concerning my ACC and school.
Everything was going good until my computer crashed, now I'm behind of school but I've got today and tomorrow to catch up. So thats good. It'll be good to be able to catch up with all my hw.
My ACC stopped effecting me as much concerning my school work after much needed prayer. Then suddenly thats when my computer crashed. And so with the stress it started acting up again, through headaches. But things are looking up. I had a BAD ACC headache yesterday but things are better today, praise God.
For ACCA we're still hard at work on the T-shirts and the petiton, I'm working on some other things as well. And I've got a friend that is putting together the music for the song for ACCA. I'm doing my best to get some stuff done for the kids of ACCA. We want to make this for ALL accers and those that dont have ACC.
ACCA is wearing the silver ribbons to represent brain disorders now. And we're loving what we're doing with that. God is good. I've got this month left of school then I'm done for the summer. And this summer I'm doing my internship, as well as doing a LOT for ACCA. This should be fun.
-Lynnea
Sunday, April 5, 2009
Monday, March 2, 2009
Passion lit up again
Hey all-
Well School is still taken up most of my time though every free moment goes to ACCA. I love what I'm doing with ACCA. I've met SO many amazing parents and ACCers. My passion to get word out about ACC grows every single day.
Lately at school I've been called a liar, a fake, and a drama queen. This has all been because of my ACC. And I've been called these things by people who dont understand the disorder and those that dont WANT to understand it. And It's honestly annoyed me to no end. But also it has helped me to see the need of knowledge about the disorder ACC....and I want people to know about it, I want to be a voice to a people that dont get it. Lets face it, I'm stubborn, and with Christ in my heart and some people backing me up I can do this!!! And I WANT to. I'm excited about this passion that keeps growing within me.
About school, I'm actually doing okay in Math so far, which is good. I'm doing okay in my other classes. My ACC has been acting up a lot more due to stress and being mistreated but I'm trying to control it and overcome it. But I'm excited because after this week is spring break then I have 6 weeks left of school and I CANT WAIT TO BE DONE!!!!! :)
God Bless yall
-Lynnea
(ACCA)
"A Little Bit Longer And I'll Be Fine"
Well School is still taken up most of my time though every free moment goes to ACCA. I love what I'm doing with ACCA. I've met SO many amazing parents and ACCers. My passion to get word out about ACC grows every single day.
Lately at school I've been called a liar, a fake, and a drama queen. This has all been because of my ACC. And I've been called these things by people who dont understand the disorder and those that dont WANT to understand it. And It's honestly annoyed me to no end. But also it has helped me to see the need of knowledge about the disorder ACC....and I want people to know about it, I want to be a voice to a people that dont get it. Lets face it, I'm stubborn, and with Christ in my heart and some people backing me up I can do this!!! And I WANT to. I'm excited about this passion that keeps growing within me.
About school, I'm actually doing okay in Math so far, which is good. I'm doing okay in my other classes. My ACC has been acting up a lot more due to stress and being mistreated but I'm trying to control it and overcome it. But I'm excited because after this week is spring break then I have 6 weeks left of school and I CANT WAIT TO BE DONE!!!!! :)
God Bless yall
-Lynnea
(ACCA)
"A Little Bit Longer And I'll Be Fine"
Wednesday, February 11, 2009
Update on my school and ACC
Hey all,
First off it seems as though a lot of people who say they want to help with ACCA arent actually backing it up with help! Which stinks but someday I hope to meet more people that actually want to help.
Next i want to tell you all how my schooling for this semester is going. I'm finding myself extreemly busy with all the stuff that I have to due like HW, projects, and studying. But life is good. I cant complain. Here is an update by classes.
Ethics: This class is difficult because he calls for memorization, presentations, and writing papers. All three things are things that I'm horrible at due to my ACC. But I'm doing my best and seem to be doing alright in there so far.
Death And Dying: I Love this class! It challenges me to think outside the box about many futuristic things. And helps me in learning how to counsel those that struggle with grief.
Math: Well this class is my hardest one but surprisingly I'm doing alright so far. On my first test I got a perfect score. And so I'm very happy about that. Dont let anyone tell you that because you have a disability you cant do something.
Effective Youth Communications: This class is taught by one of my favorite professors. It's a preaching class and I love it. It's really helping me with my presentation skills.
Philosophy of Youth Ministry: We do discussions in this class and I used to hate it but I'm really starting to come out of my shell about that. so thats fun.
_____________________________
School takes up most of my time but I love every minute of it. I'm learning so much this semester, and life is good. I'm struggling a lot with people not respecting me due to my ACC but I know that things will get better.
First off it seems as though a lot of people who say they want to help with ACCA arent actually backing it up with help! Which stinks but someday I hope to meet more people that actually want to help.
Next i want to tell you all how my schooling for this semester is going. I'm finding myself extreemly busy with all the stuff that I have to due like HW, projects, and studying. But life is good. I cant complain. Here is an update by classes.
Ethics: This class is difficult because he calls for memorization, presentations, and writing papers. All three things are things that I'm horrible at due to my ACC. But I'm doing my best and seem to be doing alright in there so far.
Death And Dying: I Love this class! It challenges me to think outside the box about many futuristic things. And helps me in learning how to counsel those that struggle with grief.
Math: Well this class is my hardest one but surprisingly I'm doing alright so far. On my first test I got a perfect score. And so I'm very happy about that. Dont let anyone tell you that because you have a disability you cant do something.
Effective Youth Communications: This class is taught by one of my favorite professors. It's a preaching class and I love it. It's really helping me with my presentation skills.
Philosophy of Youth Ministry: We do discussions in this class and I used to hate it but I'm really starting to come out of my shell about that. so thats fun.
_____________________________
School takes up most of my time but I love every minute of it. I'm learning so much this semester, and life is good. I'm struggling a lot with people not respecting me due to my ACC but I know that things will get better.
Friday, December 26, 2008
Happy HOLYdays and my school and ACC
Hey everyone....
I'm SO sorry I've not done any blogs for this page....I feel like such a slacker though I will tell you I've been trying to get others to do some entries for this...and no one has been able to take time to do that. Lives are busy but hopefully at least I'll be able to do better with his.
I hope everyones Christmas was AMAZING and that the New year brings amazing blessings to each of you.
My schooling this past semester took a lot out of me. But it was great, I tried my hardest I did all my work and stayed up on everything and actually passed with 2 B's 2 C's and 1 A!
Next semester I have Ethics, Death and Dying, Math, and 2 youth ministry classes so I only hope I do as well or better than I did this semester...After next semester I'll have 2 semesters left!!! I CANT WAIT....
Hope this wasnt too boring God Bless
-Lynnea
ACCA
http://sites.google.com/site/accawareness/
oh and on myspace add us http://www.myspace.com/accawareness
I'm SO sorry I've not done any blogs for this page....I feel like such a slacker though I will tell you I've been trying to get others to do some entries for this...and no one has been able to take time to do that. Lives are busy but hopefully at least I'll be able to do better with his.
I hope everyones Christmas was AMAZING and that the New year brings amazing blessings to each of you.
My schooling this past semester took a lot out of me. But it was great, I tried my hardest I did all my work and stayed up on everything and actually passed with 2 B's 2 C's and 1 A!
Next semester I have Ethics, Death and Dying, Math, and 2 youth ministry classes so I only hope I do as well or better than I did this semester...After next semester I'll have 2 semesters left!!! I CANT WAIT....
Hope this wasnt too boring God Bless
-Lynnea
ACCA
http://sites.google.com/site/accawareness/
oh and on myspace add us http://www.myspace.com/accawareness
Wednesday, September 17, 2008
ACC Story:Sandie and her son Matthew. Focus on the Positive.
This blog was written by a parent of a young boy that has ACC. He is non-verbal and I can already tell you through her e-mails that this boy is amazing. Sandie and I have become good friends. She's a wonderful encourager and a blessing to my life personally. So go on, read her and matthews story! Also Matthew has a success story on the ACCA website so you are welcome to look that up.
And when your done check out her very wonderful website: http://members.tripod.com/scenicbeauty/AngelsAroundTheWorld.html
Then go look at the success stories to learn a bit more about Matthew: http://sites.google.com/site/accawareness/
God Bless
__________________Sandies blog entry starts here._______________________
I don’t have agenesis of the corpus callosum myself. I am the parent of a boy who is almost 15 years old in a few weeks. His name is Matthew and he loves to laugh, he has a wonderfully silly sense of humor and when he laughs he can make others in the room laugh right along with him. His happy smiley silly giggles throughout the day brighten my day and he just keeps this beautiful approach to life each and every day despite the many challenges and struggles he deals with as a result of being born with agenesis of the corpus callosum (ACC).
Matthew is globally delayed and he functions at about the two year old level when tested. But, he continues to learn and make progress all the time. In the beginning years it took him what seemed like eons to learn one thing and that skill didn’t come without therapy…LOTS of therapy…LOTS of repetition and just when I was about to, at times, give up and question if he would learn the skill…it clicked for Matthew and in the snap of fingers he learned what he had worked and worked AND WORKED on. A connection was made and he learned a new skill. All that hard work, all that therapy, all that practice, all that repetition was not wasted…not one little bit. It’s what Matthew needed and it made it all worth it. Matthew learned to crawl when he was about 2 ½ years old but in the beginning he would crawl backwards. Soon he did begin crawling forwards but it was so hard for him due to his low tone and motor planning so he would crawl slowly with his head looking down at the floor. I loved seeing him crawl but I would also cringe because if I didn’t watch him closely he could bump right into the wall or whatever was in his way since he wasn’t able to crawl AND look where he was going at the same time. Eventually he did gain strength and was able to crawl while looking. He sat up by himself when he was 11 months old but he still preferred to slouch and lean against something for support or lean against someone because it was a lot of work for him.
When Matthew entered grade school I saw a difference with the learning coming a little more quickly. It didn’t always take so much time for him to learn something new. At this time he was not walking independently but he would use a walker and needed close supervision. He struggles (even to this day) with balance issues. He has trouble with stairs, struggles with depth perception, doesn’t ride a two wheel bike but he can ride a trike and loves it! J He defied all textbook odds when I picked him up from school one day and when we got outside he let go of my hand and took his first independent steps! I was amazed at what he accomplished and couldn’t believe my eyes…my seven-year-old boy was WALKING! :)
It isn’t always easy to focus on the positive when there are sometimes so many struggles and challenges but it IS so important and very worthwhile. I encourage you to close your eyes at the end of each day and see that positive picture in your mind of something your child did, learned, accomplished and CAN do no matter how small and give thanks to God.
~Sandie *Mom to almost 15 year old Matthew with complete ACC*
And when your done check out her very wonderful website: http://members.tripod.com/scenicbeauty/AngelsAroundTheWorld.html
Then go look at the success stories to learn a bit more about Matthew: http://sites.google.com/site/accawareness/
God Bless
__________________Sandies blog entry starts here._______________________
I don’t have agenesis of the corpus callosum myself. I am the parent of a boy who is almost 15 years old in a few weeks. His name is Matthew and he loves to laugh, he has a wonderfully silly sense of humor and when he laughs he can make others in the room laugh right along with him. His happy smiley silly giggles throughout the day brighten my day and he just keeps this beautiful approach to life each and every day despite the many challenges and struggles he deals with as a result of being born with agenesis of the corpus callosum (ACC).
Matthew is globally delayed and he functions at about the two year old level when tested. But, he continues to learn and make progress all the time. In the beginning years it took him what seemed like eons to learn one thing and that skill didn’t come without therapy…LOTS of therapy…LOTS of repetition and just when I was about to, at times, give up and question if he would learn the skill…it clicked for Matthew and in the snap of fingers he learned what he had worked and worked AND WORKED on. A connection was made and he learned a new skill. All that hard work, all that therapy, all that practice, all that repetition was not wasted…not one little bit. It’s what Matthew needed and it made it all worth it. Matthew learned to crawl when he was about 2 ½ years old but in the beginning he would crawl backwards. Soon he did begin crawling forwards but it was so hard for him due to his low tone and motor planning so he would crawl slowly with his head looking down at the floor. I loved seeing him crawl but I would also cringe because if I didn’t watch him closely he could bump right into the wall or whatever was in his way since he wasn’t able to crawl AND look where he was going at the same time. Eventually he did gain strength and was able to crawl while looking. He sat up by himself when he was 11 months old but he still preferred to slouch and lean against something for support or lean against someone because it was a lot of work for him.
When Matthew entered grade school I saw a difference with the learning coming a little more quickly. It didn’t always take so much time for him to learn something new. At this time he was not walking independently but he would use a walker and needed close supervision. He struggles (even to this day) with balance issues. He has trouble with stairs, struggles with depth perception, doesn’t ride a two wheel bike but he can ride a trike and loves it! J He defied all textbook odds when I picked him up from school one day and when we got outside he let go of my hand and took his first independent steps! I was amazed at what he accomplished and couldn’t believe my eyes…my seven-year-old boy was WALKING! :)
It isn’t always easy to focus on the positive when there are sometimes so many struggles and challenges but it IS so important and very worthwhile. I encourage you to close your eyes at the end of each day and see that positive picture in your mind of something your child did, learned, accomplished and CAN do no matter how small and give thanks to God.
~Sandie *Mom to almost 15 year old Matthew with complete ACC*
Monday, September 8, 2008
Lynnea: ACC and School
Hey there from Ohio! Well as of now I'm starting my second week of school tomorrow. Just had my first monday class today. School is going to be tough this semester. But I'm excited.
If you know me you've heard me talk about how hard it is to be in school with ACC. I'm in my 4th year of college and it hasnt gotten any easier but I've learned so much. Not just in school but about myself. I've learned that since I go to a private university it's hard to get the accomodations I need. I dont really get much respect in school either. People just dont get that I have a problem and need help. They think I'm exagerating. Some have even said I'm LYING about my ACC. Now why on earth would I make up a brain problem just so people could make jokes about me missing part of my brain?
I'm getting off topic. So far it seems as though while this will be a tough semester it will be my best semester yet! My professors seem very understanding and I'm going to be working my but off. I'm doing my best to stay up on my reading. And so are I'm doing well. I'll keep small updates about school and maybe sometime we'll hear from some parents of kids in school. If you ever want to be an addition to this blog let me know! I'm sure the readers would love to hear from more than me! God Bless
-Lynnea
ACCA
If you know me you've heard me talk about how hard it is to be in school with ACC. I'm in my 4th year of college and it hasnt gotten any easier but I've learned so much. Not just in school but about myself. I've learned that since I go to a private university it's hard to get the accomodations I need. I dont really get much respect in school either. People just dont get that I have a problem and need help. They think I'm exagerating. Some have even said I'm LYING about my ACC. Now why on earth would I make up a brain problem just so people could make jokes about me missing part of my brain?
I'm getting off topic. So far it seems as though while this will be a tough semester it will be my best semester yet! My professors seem very understanding and I'm going to be working my but off. I'm doing my best to stay up on my reading. And so are I'm doing well. I'll keep small updates about school and maybe sometime we'll hear from some parents of kids in school. If you ever want to be an addition to this blog let me know! I'm sure the readers would love to hear from more than me! God Bless
-Lynnea
ACCA
Thursday, August 21, 2008
Website for ACC Awareness
Hey all ACC Awareness has also started calling ourselves ACCA or Acca. Also in other news My mom is trying to get word out about the website that I made. She keeps sending people the blog that as of now doesnt link to the site, but the site links to it. From now on at the end of each post I'm going to do a shameless plug for the site by making it my signature. Once I get back to school be expecting more blogs from our supporters as well as blogs from me about School and ACC. (I will try to minimize the venting) Also I've been gaining many more friends with ACC and will hopefully be asking them to write something for this blog!!!!
Thanks so much for your patience and willingness to read! God Bless
-Lynnea
http://sites.google.com/site/accawareness/
Thanks so much for your patience and willingness to read! God Bless
-Lynnea
http://sites.google.com/site/accawareness/
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